ISTP 2026 Conference
“Theorizing in Dark Times – Art, Narrative, Politics”
June 8 – June 12, 2026 | Brooklyn, NY, USA
Conference Agenda
Overview and details of the sessions of this conference. Please select a date or location to show only sessions at that day or location. Please select a single session for detailed view (with abstracts and downloads if available).
|
Daily Overview |
| Session | |
|
Panel: Place-Making and Care Location: North Hall 106* link to join Session Chair: Pernille Juhl | |
| Presentation 4 | |
Using photovoice to understand the experiences of unpaid caregivers of Individuals with Severe Mental Illness in Delhi, India University of Massachusetts Amherst, United States of America In India, the lifetime prevalence of mental health disorders is estimated at 13.7% of the general population, yet 70–92% of individuals with mental disorders never receive treatment. Most individuals with severe mental illness in India prefer to stay with their families. This preference has created a growing population of unpaid caregivers and leads to a significant caregiver burden. Additionally, there is a lack of research on the political, social, and structural barriers and opportunities of unpaid caregiving in India; more attention needs to be paid to this topic due to vast mental health treatment gaps and a lack of support for caregivers. The present study aims to fill this gap by exploring the challenges, cultural understanding of caregiving, and political and social determinants of healthcare associated with unpaid caregiving in India. To facilitate this understanding, the arts-based approach photovoice — a visual participatory method in which participants use photography to reflect on their experiences and represent their communities — will be employed with 8–10 unpaid caregivers in India. Over six sessions, participants will be introduced to photovoice as a method, take photographs related to their experiences, and engage in group discussions related to their photographs. The photovoice group discussions will occur in three phases: 1) selecting photographs, 2) storytelling and contextualizing, and 3) codifying the themes of the photographs. Additionally, a plan will be developed with the community to share the research and photographs through an exhibition. Lastly, the photovoice process will be supplemented by 20 additional interviews. | |

