Overview and details of the sessions of this conference. Please select a date or location to show only sessions at that day or location. Please select a single session for detailed view (with abstracts and downloads if available).
Session Chair: Patrick Brown, University of Amsterdam
Location:UP.4.212 University of Manchester
Building: University Place, Fourth Floor
Severe Asthma Patients’ Risk Work and the Use of Biologicals: Navigating the Risks and Uncertainties of State-of-the-art Medication in Everyday Life
Bert de Graaff, Hester van de Bovenkamp, Roland Bal
Erasmus School of Health Policy & Management, Erasmus University Rotterdam
Severe asthma is by definition difficult to control with standard asthma medication. Patients are always at-risk of new exacerbations occurring. Preventative self-care, medication use and regular hospital visits mean that not only the illness but also its treatment burdens patients’ everyday lives. This burden may have changed due to the recent introduction of biologic agents (‘biologicals’) to the asthma treatment arsenal. Biologicals appear relatively successful in patients (re)gaining control of the severe asthma, however long-term effects are uncertain and because of their high costs this medication is reserved for a select group of patients.
In this paper we explore the experiences of risk and uncertainty in the everyday life of patients with severe asthma in the Netherlands in relation to the use of biologicals. We contribute to research on risk work as we emphasize how patients work to negotiate shifts in the ‘burden of treatment’ and illness in their everyday lives, and how such work is framed by risk and uncertainty. We do so by interviewing 10 patients using life-history techniques and by the use of existing patient stories from an established collection of ego-documents. In our analysis of these patient narratives we focus on how patients work to make sense of the use of biologicals and their effect(s) on patients’ everyday lives. We focus in particular on whether and how patients navigate and translate between the risks and uncertainties of state-of-the-art medical technology, self-care and the experienced physical impact of illness itself.
The Formation and Perceptions of Food- Related Risks: Aspects of Food- related Risks in Turkey
Aydin Adnan Menderes Universitesi, Turkey
In recent years, food related risks and fears increasingly becoming one of the most heated public discourse. These debates ranging from very often pesticides in produce, hormones in milk, antibiotics in meat to cancerous food dyes, which are said to have been added to brown bread, and may even be related to a wide variety of foods. Even government declared a war against ‘the three White Poisons’(namely salt, flour and sugar). Research shows that more than half of the population (% 55) did not find food safe at all. There are some recent media reports about big chicken-farm producers declaring bankruptcy partly caused by this widespread chicken-meet fear’s in the media. It is already known that this industry lost its % 40 market shares as a result of bird-flu epidemic occurred ten years ago. Several food-related scandals like detection of anthrax disease in beef meat, GM corn and rice, high level of pesticide residue in agricultural products have promoted public concerns about food risks. The aim of this paper is to find out how food-related risks are perceived, what kinds of foods are often related as risky foods, and what are sociocultural, economic and regional variables. The paper will draw on quantitative questionnaire (N 750) compiled in two different regions in Turkey.