Conference Agenda
Overview and details of the sessions of this conference. Please select a date or location to show only sessions at that day or location. Please select a single session for detailed view (with abstracts and downloads if available).
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PAPERS: Designing with Others Location: 50 George Square, G.03 Zoom Link Accessibility: https://www.accessable.co.uk/the-university-of-edinburgh/central-area/access-guides/george-square-50 Session Chair: Cláudia de Souza Libânio, Federal University of Health Sciences of Porto Alegre Session Chair: Tiago Barros Pontes e Silva, University of Brasilia | |
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Designerly Ethics: reflections on shadowing cancer patients and ideas for embedding ethics in practice 1: University of Zaragoza, Spain; 2: Erasmus MC; 3: IISA – Instituto de Investigación Sanitaria Aragón; 4: Fractal Strategy Procedural ethics—applying for approval—alone may fail to address many issues that arise during fieldwork (ethics in the field), particularly when designers enter sensitive contexts such as healthcare. Building on our earlier contribution (DRS 2024: Embedded Ethics in Practice), we reflect on shadowing recently diagnosed cancer patients through a set of ethical considerations. Using framework analysis, we examine challenges encountered by what we term shadowers—five designers and one nurse who accompanied 14 patients throughout the service journey, from consultations to treatment. By noting the actions taken and feelings experienced as ethical issues emerged, we question how to navigate such complexities. Examining the shadowers’ narratives alongside relevant literature, we generate five themes that describe their experiences whilst proposing speculative, creative ways to address ethical challenges: On doing, not doing and harm; Toward risk-and-benefit consent forms; The researcher’s right to withdraw; Who is who?; and The before, during and after of embedded ethics. View Paper: https://doi.org/10.21606/drs.2026.2226
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