Conference Agenda
Overview and details of the sessions of this conference. Please select a date or location to show only sessions at that day or location. Please select a single session for detailed view (with abstracts and downloads if available).
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PAPERS: Designing Preventive Health Technologies and Practices Location: Appleton Tower, LT4 Zoom link accessibility: https://www.accessable.co.uk/the-university-of-edinburgh/central-area/access-guides/appleton-lecture-theatre-4-edinburgh Session Chair: Ayşe Özge Ağça, Universidade de Lisboa, ITI/LARSyS, Instituto Superior Técnico, Lisbon, Portugal Session Chair: Teresa Almeida, Universidade de Lisboa, ITI/LARSyS, Instituto Superior Técnico, Lisbon, Portugal | |
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Tangible conversations for uncertain futures: A design-led approach with families affected by Multiple Sclerosis Queen Mary, University of London, United Kingdom Neurological prevention science is gaining traction, with implications for people at raised familial risk of Multiple Sclerosis (MS). We examine how design can intervene in this emerging prevention space through Digesting Science (DS), a co-designed public engagement project that brings families affected by MS together through events and playful, hands-on activities in community settings. We analyse post-event open-ended evaluation forms and a follow up study using auto-photo-elicitation with semi-structured interviews with children and parents. Findings show that DS makes MS discussable without increasing anxiety, embodied activities create shared reference points and language for talking about symptoms, science and uncertainty. We conceptualise these effects as situated preparedness, readiness built through context-specific adjustments and reorganisations of care in family life. We argue that such situated design work builds the relational groundwork required for future, responsible discussions around neurological prevention. View Paper: https://doi.org/10.21606/drs.2026.1526
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